Gadolinium Toxicity

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Pain from Peripheral Neuropathy can be caused by metals like Gadolinium

When we conducted our Symptom Survey early in 2014, the one chronic symptom that everyone reported was “Pain”.  Some identified it as being an ache with dull, continuous pain, while others described it as burning, numbness, tingling, or prickling sensations (paresthesia), or as deep bone pain, or electric-like feelings.  The location of the pain was primarily in the extremities, followed by the hips, joints, and ribs.

From my own experience, I can tell you that I always have some level of pain even with taking prescription medication.  While stronger medications might make me feel pain free, I prefer to live with a tolerable level of pain rather than feel over-medicated.

From what I have read, it seems that most of our pain is the result of damage to our nervous system. (more…)

Small Fiber Sensory Neuropathy from Gadolinium Toxicity

As you will see, I have been diagnosed as having Small Fiber Sensory Neuropathy, and the possible cause would appear to be my Gadolinium Toxicity.   This posting explains a bit about Small Fiber Sensory Neuropathy.

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Pain – what kind of pain.

Let me describe three different types of pain I have experienced.

The first is the common muscle pain we all get the day after we overuse some muscles.  It is sort of a dull pain and usually associated with trying to use the muscle we overused.  This is not the type pain I got from my herniated disc or the pain I associate with my Gadolinium Toxicity.

The second is the pain that was associated with my herniated lumbar (L4-L5) disc.  The was an excruciating pain that was all down my left leg.  It was so strong that I went to the emergency room twice for the pain that woke me up in the middle of the night. I could not walk without crutches when it was at it’s worst.  This occurred 4 times with varying intensities and length of incapacitation. When the non-contrast MRI showed disc material the size of the end of my little finger bulging out the left side of my spine, the doctor said it was time for surgery.  The day after the surgery, the pain was gone ant it has not returned.  I am working to strengthening the muscles in my back so that it does not reoccur at another disc.

The third type of pain is caused by Small Fiber Neuropathy (SFN) which I have been diagnosed with.  All of the easily diagnosed potential causes of my SFN have tested negative twice.  But it can be caused by metal toxicity. So although there is no way to prove this, I am certain it is caused by the Gadolinium Toxicity.  In SFN, something causes the very ends of the nerves to die.  As they die, the symptoms can be pins and needles, numbness, tingling, and sharp, burning pain.  I have sharp burning pain in my feet, my ankles, my right flank, and quite frankly the worst, in my mouth.  I take some mild medications to help relieve the pain, but it is there nonetheless.  I have just decided to go on with life in spite of the pain, since it will never go away, and likely get worse.  So I am very active playing golf, doing my exercises, going to the fitness center, biking, kayaking, painting my house, and anything else that needs done, because I may not be able to do these things someday.

So that is my pain story

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